Great Plains IDeA CTR Network: PBRN Directory

The Great Plains IDeA CTR Network seeks to strengthen the research infrastructure in our region and improve population health. While there are many avenues to reach this goal, we recognize that Practice-based Research Networks (PBRNs) already work on the frontlines of these efforts. In recognition of our comparable goals, our network aims to consult with PBRNs and others in our network to create a directory of PBRNs in our region including their leadership and area of focus. Additionally, in conjunction with our Community Advisory Board and our Institutional Partners, we coordinate to assist regional PBRNs expand and collaborate with researchers in similar fields of study. Below is the 2017 PBRN Directory for the Great Plains region.

2017 Survey

PBRN Name:

Rheumatology and Arthritis Investigational Network (RAIN)

Leader or Principal Investigator:

Jim O'Dell, MD

Number of sites connected to this PBRN:

6

Has PBRN submitted for grant funding in the past?

Yes

Is this PBRN currently funded?

Yes

If yes, what is the funding entity?

VA, NIH, ACR, etc

Total patient population at this PBRN:

30

Number of patients currently enrolled in research at this PBRN:

999+

Total number of ongoing studies occurring in this PBRN:

6

Number of new studies initiated in the last year:

2

 

2017 Survey

PBRN Name:

Great Plains Primary Care PBRN

Description:

Obesity interventions in rural and metro Primary Care clinics

Leader or Principal Investigator:

Robert Schwab, MD

Number of sites connected to this PBRN:

10

Has PBRN submitted for grant funding in the past?

Yes

Is this PBRN currently funded?

No

If yes, what is the funding entity?

 

Total patient population at this PBRN:

20000

Number of patients currently enrolled in research at this PBRN:

0

Total number of ongoing studies occurring in this PBRN:

2

Number of new studies initiated in the last year:

2

 

2017 Survey

PBRN Name:

Nebraska Lymphoma Study Group

Leader or Principal Investigator:

Julie Vose, MD, MBA

Number of sites connected to this PBRN:

8

Has PBRN submitted for grant funding in the past?

Yes

Is this PBRN currently funded?

Yes

If yes, what is the funding entity?

State, University Foundation, Division of Hem/Onc

Total patient population at this PBRN:

6239

Number of patients currently enrolled in research at this PBRN:

1000

Total number of ongoing studies occurring in this PBRN:

20

Number of new studies initiated in the last year:

9

 

2017 Survey

PBRN Name:

Behavioral Health Education Center of Nebraska (BHECN)

Description:

Training mental health counselors in the area of substance use disorders for rural Nebraska

Leader or Principal Investigator:

Tina Chasek, PhD, LIMHP, LADC

Number of sites connected to this PBRN:

2 (UNMC and UNK)

Has PBRN submitted for grant funding in the past?

Yes

Is this PBRN currently funded?

Yes

If yes, what is the funding entity?

State of NE, HRSA, NU collaborations and ServeNE

Total patient population at this PBRN:

60 - 100

Number of patients currently enrolled in research at this PBRN:

6

Total number of ongoing studies occurring in this PBRN:

2

Number of new studies initiated in the last year:

2

 

2017 Survey

PBRN Name:

Neurology Practice Based Research Network (NPBRN)

Description:

Quality Improvement using the EMR & Best Practices

Leader or Principal Investigator:

Demetrius “Jim” Maraganore, MD

Number of sites connected to this PBRN:

13 practices

Has PBRN submitted for grant funding in the past?

Yes

Is this PBRN currently funded?

Yes

If yes, what is the funding entity?

AHRQ R01, Northshore R&D funds

Total patient population at this PBRN:

?

Number of patients currently enrolled in research at this PBRN:

0

Total number of ongoing studies occurring in this PBRN:

11 QI projects (11 toolkits)

Number of new studies initiated in the last year:

0

 

2017 Survey

PBRN Name:

SIREN (Social Interventions Research and Evaluation Network)

Leader or Principal Investigator:

Jeffrey Cooper, MD, FAAEM

Number of sites connected to this PBRN:

14

Has PBRN submitted for grant funding in the past?

No

Is this PBRN currently funded?

Yes

If yes, what is the funding entity?

NINDS

Total patient population at this PBRN:

0 (just starting out)

Number of patients currently enrolled in research at this PBRN:

NA

Total number of ongoing studies occurring in this PBRN:

1 - HOBIT study (Hyperbaric Oxygen and Traumatic Brain Injury)

Number of new studies initiated in the last year:

1

 

2017 Survey

PBRN Name:

VA Rheumatoid Arthritis (VARA) registry

Description:

Longitudinal data registry and biobank of US Veterans with rheumatoid arthritis

Leader or Principal Investigator:

Ted Mikuls, MD, MSPH

Number of sites connected to this PBRN:

13

Has PBRN submitted for grant funding in the past?

Yes

Is this PBRN currently funded?

Yes

If yes, what is the funding entity?

VA, NIH, industry

Total patient population at this PBRN:

 

Number of patients currently enrolled in research at this PBRN:

~2,800

Total number of ongoing studies occurring in this PBRN:

>10

Number of new studies initiated in the last year:

3

2018 Survey

PBRN Name:

Integrated Cancer Repository for Cancer Research (iCaRe2)

Description:

The iCaRe2 is a multi-institutional resource created and maintained by the Fred & Pamela Buffett Cancer Center to collect and manage standardized, multi-dimensional, longitudinal data and biospecimens on consented adult cancer patients, high-risk individuals, and normal controls. The distinct characteristic of the iCaRe2 is its geographical coverage, with a significant percentage of small and rural hospitals and cancer centers. The iCaRe2 advances comprehensive studies of risk factors of cancer development and progression and enables the design of novel strategies for prevention, screening, early detection and personalized treatment of cancer. Centers with expertise in cancer epidemiology, genetics, biology, early detection, and patient care can collaborate by using the iCaRe2 as a platform for cohort and population studies.

Leader or Principal Investigator:

Dr. Whitney Goldner

Number of sites connected to this PBRN:

81

Has PBRN submitted for grant funding in the past?

Yes

Is this PBRN currently funded?

Yes

If yes, what is the funding entity?

Helmsley Grant #2012PG-RHC031, Fred & Pamela Buffett Cancer Center; TCCR: division of DEM, Head and Neck Surgery, Clinical Research Center, R03 CA175668-01A1, LB506; PCCR: Department of Health and Human Services (LB595,R01 CA140940, LB506), National Institute of Health, Nebraska EpSCoR Infrastructure Improvement Grant; Randall Brand ENH overhead funds, Sherman's laboratory overhead funds, Clinical Research Center; GUCaRe: Cattlemen's Ball of Nebraska; TORC: UNMC Clinical ResearchCenter; National Institutes of Health (NIH)

Total patient population at this PBRN:

Unspecified - No limit on recruitment

Number of patients currently enrolled in research at this PBRN:

25,972

Total number of ongoing studies occurring in this PBRN:

~10 -12

Number of new studies initiated in the last year:

21

Funding for PBRN-specific activities can seem limited and difficult to find. However, opportunities do exist through such organizations as the Patient-Centered Outcomes Research Institute (PCORI) and the Robert Wood Johnson Foundation. The Agency for Healthcare Research and Quality (AHRQ) has compiled a short list of funding opportunities that apply to the PBRN structure and operations. You can find the list of opportunities on their website by clicking HERE.
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