PBRNs exist across several healthcare disciplines. The PBRN Directory catalogs active PBRNs across the Great Plains spanning many diseases and disciplines. Members of the Great Plains Primary Care PBRN are encouraged to support and engage with local PBRNs to spur collaboration and address shared community health needs.
For more information about specific PBRNs, including research interests, size, members, and contact information, click on the drop-down menu below.
Integrated Cancer Repository for Cancer Research (iCaRe2)
The iCaRe2 is a multi-institutional resource created to collect and manage standardized, multi-dimensional, longitudinal data and bio-specimens on adult cancer patients, high-risk individuals, and normal controls.
For more information, visit https://www.unmc.edu/cancercenter/registry/
Nebraska Lymphoma Study Group
The NLSG brings community oncologists and pathologists and their counterparts at the University of Nebraska Medical Center together to provide the very best in diagnostic and treatment care. Their patients receive state-of-the-art therapies where they live, while accessing the expertise and resources of an academic health sciences center.
For more information, visit https://www.unmc.edu/intmed/divisions/onchem/patient-care/lymphoma/nlsg.html
- Great Plains Cognitive Network (GP CogNET)
GP CogNET is a dedicated research network for Alzheimer’s disease and related diseases, linking community members to brain-health focused research, education, and care.
For more information, visit https://gp.cognet.unmc.edu
Neurology Practice Based Research Network (NPBRN)
The NPBRN aims to improve quality of treatment and conduct practice-based research in Neurology using electronic medical records.
PI: Demetrius (“Jim”) Maraganore, MD
For more information, visit https://pbrn.ahrq.gov/pbrn-registry/neurology-practice-based-research-network
Nebraska Pediatric Clinical Trials Unit (NPCTU)
The NPCTU was established in 2016 as part of the IDeA States Pediatric Network with funding from the National Institutes of Health (NIH) to participate in their Environmental influences on Child Health Outcomes (ECHO) program. One of the main goals of the NIH ECHO program and the IDeA States Pediatric Network (ISPN) is to increase the participation of rural states in pediatric clinical research studies.
For more information, visit https://www.unmc.edu/chri/nebraskapedsctu/index.html
Rheumatology and Arthritis Investigational Network (RAIN)
For more information, visit https://www.unmc.edu/intmed/divisions/rheum/research/index.html
VA Rheumatoid Arthritis Registry (VARA)
Longitudinal data registry and biobank of US Veterans with rheumatoid arthritis.
FORWARD: The National Databank for Rheumatic Disease
FORWARD—The National Databank for Rheumatic Diseases is the largest patient-reported research data bank for rheumatic disorders in the United States. We report to the rheumatology community in peer-reviewed journals and at the major scientific conferences.
For more information, visit https://www.forwarddatabank.org/